Welcome to the Parry-Romberg Syndrome Resource, Inc. website. We are a unique nonprofit organization dedicated to providing awareness of Parry-Romberg Disease. The goal of our site is to provide comprehensive and current information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals.
We believe that communicating the physical and psychological debilitating affects of Parry-Romberg Syndrome will inspire a positive outcome. By educating the medical community and providing resources to those afflicted, we represent hope for research, early diagnosis, and treatment.
Parry-Romberg Syndrome is a rare disorder characterized by slow progressive deterioration (atrophy) of the skin and soft tissues of half of the face (hemifacial atrophy). It is thought to be more common in females than in males and usually begins between the ages of 5 and 15 years. Cases of disease onset in adulthood have been reported as well. Parry-Romberg Syndrome may also be accompanied by neurological abnormalities, optic nerve damage, bone loss, alopecia, and pigmentation irregularities. The cause of Parry-Romberg Syndrome is unknown and currently there is no cure for the disease.