Support for Parry-Romberg Syndrome
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Johnson & Johnson Patient Assistance Foundation Inc. Help get the PRESCRIPTIONS you need. www.jjpaf.org.
- The Romberg Connection is a wonderful online support organization. Members gain insightful information through communication with other families experiencing Parry-Romberg Syndrome. This site also offers a wealth of medical information resources.
- The Scleroderma Foundation offers information on several camps that
provide activities supporting youth with skin conditions. Camp Discovery
is supported by the American Academy of Dermatology. http://www.scleroderma.org/juvenile/juv-camps.shtm
http://www.campdiscovery.org/ - Prepare yourself and your child on how to cope with the facial differences that Parry-Romberg Syndrome may cause. Dr. Thomas Lehman advises parents on how to answer sensitive questions. Read Dr. Lehman's article>>
- NEEDY MEDS http://www.needymeds.org/index.htm
A comprehensive site which provides medical resources including; Disease Based Assistance, Free/Low Cost Clinics, Government Programs, Discount Drug Cards, Programs for Children - Beyond a Glimpse:
http://www.beyondaglimpse.com/
Beauty In Imperfection Do You See Beyond The Shape of Me?